Creation Story

Picture of Kilgallon Family

'The Whole Autism Family' was born to offer help, support and guidance to families who are impacted by autism.

As a family we had to battle for Tolan to get his diagnosis, and we are still battling to obtain a diagnosis for Fredi. Through this time we received very little support, and quickly became isolated, we therefore set up 'The Whole Autism Family' as we didn’t want other families to be in the same position.

Autism has had a massive impact on everyone within our family and we believe its important that everyone has access to the support network we provide, whether it be parents, carers, grandparents, aunts, uncles and siblings.

You don’t need to have a diagnosis for your child as we found we needed help long before Tolan received his diagnosis.

We aim to offer the following through our charity…

  • Provision of a support network for parents, carers, siblings and other individuals affected by autism.
  • To hold regular informal meetings providing an environment where all family members can come together to share experiences, develop without judgement, along with the opportunity to develop a support network. 
  • To have monthly professional guests, from a range of different services, including health care professionals, other charities and individuals to promote health and well being.
  • Raise awareness of autism, including the impact autism has on family life.
  • Promote increased awareness of autistic spectrum disorder within the community. We aim to publish a quarterly newsletter so the wider community is aware of the latest news within autism, updates and events that are taking place
  • Involve local community in raising awareness by encouraging them to attend social events.

What is Autism?

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Autism is a lifelong developmental disability that affects how a person communicates with, and relates to, other people. It also affects how they make sense of the world around them.

It is a spectrum condition, which means that, while all people with autism share certain difficulties, their condition will affect them in different ways. Some people with autism are able to live relatively independent lives but others may have accompanying learning disabilities and need a lifetime of specialist support. People with autism may also experience over- or under-sensitivity to sounds, touch, tastes, smells, light or colours. Autism is part of the autism spectrum and is sometimes referred to as an autism spectrum disorder, or an ASD. 

The three main areas of difficulty which all people with autism share are sometimes known as the 'triad of impairments'. They are:

  • Difficulty with social communication
  • Difficulty with social interaction
  • Difficulty with social imagination
All people with autism can benefit from a timely diagnosis and access to appropriate services and support.

The characteristics of autism vary from one person to another but as well as the three main areas of difficulty, people with autism may have:

  • Love of Routines
  • Sensory Sensitivity
  • Special Interests
  • Learning Disabilities